Author: Keiro

  • Let There Be Lights

    In the series of Journey of a Smart Home, we’ll start with… lights.

    Choosing Your Lights

    The most important thing to keep in mind is that your light needs to be accessible by whatever protocol you prefer. In my case, that will be a set of lights that have another piece of smart home technology, Tasmota. It allows for localized control of your lights.

    The one I’ve chosen is a KAUF A21 RGBWW light bulb.

    A Brief Interlude

    ESPHome is another system where you can control various parts of your home along with Tasmota. Most devices that have Tasmota set up on the device such as the light bulb above will make it easy for you to keep the firmware updated and controlled by your HomeAssistant.

    As for what RGBWW means? It’s a reference to the colors Red, Green, and Blue. But what’s WW? In this case, it simply means White and Warm White. RGB + White + Warm White, therefore summarized as RGBWW. Effectively, what this also allows for is more accurate color representation of your lights. It’ll be able to do things like simulating sunrise and sunsets much like a circadian light would.

    Automating the Bulbs

    Setting the Scenes

  • Journey of a Smart Home

    Introduction to the Madness

    These days, smart homes’re all the rage. And for good reason, as once you dip your toes into how a smart home can work for you, you start to see possibilities.

    This is especially true for those who are disabled in some way, shape or form. I am a disabled individual as well, and so upon learning the existence of a smart home, it took some time before I could bring that vision to life because I’d always wanted to have some way of knowing when someone’s at the door. Someone’s calling.

    Or simple, basic but truly helpful devices that let you know when things’re needing attention or about to fail. Things like… a fire and smoke alarm, for example.

    What Platform?

    I use HomeAssistant as the central hub, specifically the HomeAssistant Green which is a great way to get started on your smart home. I also use the SkyConnect to connect with as many devices as possible and keep them local and off the cloud.

    Why off the cloud? Well… for starters, I can’t guarantee how long a given technology would work or for that matter the support and updates for whatever I add to my platform. So it needs to be local. This way, I can be reasonably sure that if some device loses support, it’ll still at least be controlled by the HomeAssistant Green.

    These are the starting point in which you can build your smart home. A lot of the things I use do run on wifi and bluetooth. Some are also zigbee-based. I’m slowly switching away from wifi because I’d like to reduce the reliance on wifi for my tech needs. By the time you’re done setting up a home, you could have easily 20+ wifi devices on your wifi network and… well, that can be a problem, particularly if you’re in an apartment complex with competing wifi networks, much like I am.

    What Protocols to Use?

    So now that you have a home automation platform, the next consideration to deal with is to choose how you want to connect the smart devices to your smart home. There’s a few such protocols in-use, like Z-Wave, Zigbee, Thread and Matter, not to mention the venerable HomeKit for Apple users.

    Ultimately, they all do the same thing in that you can do things with them. For me, I chose the SkyConnect because it deals with several protocols all at once on its own when powered by the HomeAssistant Green!

    This more or less lets me not worry too much about what protocols is in use but lately most of these tend to work with Tuya, a cloud-connected smart home ecosystem that I’ve had troubles with, mostly in the form of the app on my phone acting up and incorrectly detecting states of a given device.

    What’s the next step?

    Setting one up, of course! Personally, I would suggest getting the HomeAssistant Green mentioned earlier here because it simplifies set-up for you and allows you to get up and running quickly.

    Instead of showing you how to get started with this, I’ll simply refer to the excellent tutorial on getting started with HomeAssistant Green here.

    Got all of that sorted? Excellent, let’s proceed to the next step — selecting your hardware and automating them! We’ll be focusing on specific bits of hardware and how we can automate them to best serve your needs.

    Index of Posts

    1. Let There Be Lights
  • Thoughts on Hearing Aids, Part Three

    Hi!

    In Part Two, I discussed some factors that contribute to why a hearing aid is expensive. It’s been quite a few years since I last wrote that post and much has changed since.

    Cochlear Implants

    I now have a Cochlear Nucleus 7 sound processor and implant. I qualified for this implant back in 2017, when I was first hired by KnownHost LLC to come work for them, in March 2017. The operation didn’t happen until much later that year, after my insurance policy went into effect.

    That operation cost $64k, of which I paid $1,500 with the insurance, which at the time was United Healthcare. We now have Blue Cross Blue Shield of Alabama. I still work for KnownHost LLC.

    The interesting part about this was that hearing aids weren’t really covered at that time for adults, but CIs, Cochlear Implants for short, was absolutely possible when I’d had my audiology test. The result was that I was profoundly deaf in my left ear and that I was close to the edge of hearing aids being of little benefit.

    At that time, my hearing aid, which was the aBlue hearing aid from Audicus. It was non-functional when I got the operation done and hadn’t been able to hear for about a couple years at that point and was just using a generic sound amplifier that you could buy from Walmart to pass by.

    Now, with insurance and it appears that Medicaid and Medicare also cover cochlear implants. That’s nice, but not everyone will want to make use of a cochlear implant for a number of reasons, cost and the stigma being associated with having such a thing done being large factors.

    Nor would everyone desire to deal with being put under and then spending a month or so to recover from the operation and then having the implant and sound processor be activated and deal with the fun of understanding everything again.

    Surprisingly I did fairly well and things sound just about the same as I had heard things on hearing aids, but with a lot more clarity and ease of understanding things. Well, to an extent, anyway. I can hear wind, birds and things like that now compared to before. Some days are better than others when it comes to understanding people and… frankly, I wish people understood that better.

    My point, I suppose, is that Cochlear Implants are a good option, if you’re able to use it. The technology allows me to stream audio directly to my sound processor, which you can consider to be the equivalent of a hearing aid and lets me listen to music, movies and whatnot in peace, compared to loudly blaring music or movies when watching such content.

    Maybe I’ll write more thoughts on this later, but there you go.

  • Thoughts on Hearing Aids, Part Two

    Author’s note: This post was created a fair few years ago, so some of this data is out of date, but still holds true today. In addition, the numbers cited in this post have been updated to 2019 numbers.

    So, I briefly touched on the subject of how much a hearing aid costs in Part One. I did not discuss the subject of why a hearing aid is expensive.

    I will discuss that subject below in this post, now.

    Why are hearing aids so expensive? Why aren’t they covered by insurance? And why don’t they ever get any cheaper, while computers and cell phones are constantly getting cheaper?

    The How

    Let’s talk about numbers of how many people have some form of hearing loss in the US for a moment.

    • In 2019, 13.0% of adults aged 18 and over had some difficulty hearing even when using a hearing aid and 1.6% either had a lot of difficulty hearing or could not hear at all, even when using a hearing aid.
    • Hearing difficulties increased with age with 26.8% of those aged 65 and over having some difficulty and 4.1% having a lot of difficulty or could not hear at all.
    • Among adults aged 45 and over, men were more likely than women to have had some or a lot of difficulty or could not hear at all.
    • Non-Hispanic white adults aged 45–64 had higher rates of some difficulty, a lot of difficulty, or being unable to hear at all, compared with other race and Hispanic-origin groups.
    • In 2019, 7.1% of adults aged 45 and over used a hearing aid; use was higher among men than women in all age groups.

    The source for that statistic is from the CDC page, which cites several sources as well. Now, with that sort of number, you’d think hearing aids would be cheap, right? Wrong. Let’s move on to the reason why hearing aids are so bloody expensive.

    The Why

    Electronic devices go through a predictable price cycle. The first release is expensive, often clunky, and for early adopters only. The first iPod had a physical hard disk inside, worked only with the Mac, had no wireless networking, held 1000 songs, and cost $400. I won’t insult your intelligence by describing today’s iPod models. Like music players, the best hearing aids keep getting better. But they also keep getting more expensive.

    Why?

    In economic terms, they suffer from cost disease. (Yes, this is a real term. I didn’t make it up.) Prices go down when we figure out a way to make goods and services more productively. If Apple can make more iPods with the same amount of human labor, they can sell iPods at lower prices. Some industries, however, are resistant to productivity gains. The classic example, given in the paper that coined the term cost disease, is string quartets (if you play them faster or with fewer musicians, it’s really not the same), but other examples include dentistry and college education, though this may be changing with the advent of online open courses. We’ll see.

    But wait a minute. If we can make iPods faster and more cheaply relatively speaking, why can’t we do the same with hearing aids, which are also small computers?

    We can, but most of the cost of the hearing aid isn’t in the actual device. It’s the rest of the process: a professional audiologist gives you a hearing test and produces an audiogram (kind of like your eyeglass prescription, but for ears), takes molds of your ear canals, fits and adjusts the devices, and readjusts them as needed. We’re talking hours of work by skilled professionals, and that means cash money. (Note: In my experience, audiology tests take no more than 30 minutes, but there are others that have stated theirs took longer.)

    Some retailers particularly Costco have shaved hundreds or thousands of dollars off the price of fitted hearing aids through high volume sales.

    Even at Costco, however, a pair of in-ear devices costs up to $3000.

    Now, there’s also the…

    Stigma. As a society, we associate hearing impairment with stupidity and associate hearing aids with old people who are hard to deal with. These attitudes are common, and easy to fall into, and unfair. Finally,

    Cost. Discreet, top-quality hearing aids, molded to your ear canal, tuned to your hearing loss, and outfitted with the latest digital technology, cost up to $3000. Per ear.

    **In most states, adult hearing aids aren’t covered by insurance, and states that do cover them never pay for more than a fraction of the cost of the best models. Worse yet, hearing aids have to be replaced every three to five years and are easily lost or broken.

    So, there’s your why and how.

    Who pays?

    So how are you going to pay for that audiologist-fitted hearing aid? Not, in most cases, through insurance. Health insurance typically covers only the hearing test. Most states don’t require insurers to cover hearing aids at all. California covers hearing aids at $1,400 per ear. New Hampshire, one of the more generous states, covers $1500 per ear, once every five years. (The HL maintains a list of coverage by state.) Edit: It appears Hearing Loss broke the page, so I’ve updated the link to a Google cached one. NEW page: Hearing Aid Reimbursement

    And the Affordable Care Act doesn’t affect hearing aid coverage.

    Why? That doesn’t make sense!

    I looked into it, and I just can’t figure it out. Because hearing loss is so common and so expensive to treat, private insurance companies can’t make money insuring it. But that doesn’t explain why Medicare doesn’t cover hearing aids for adults, but they do for children below 18-21 and it doesn’t explain why insurance companies cover other expensive assistive devices like motorized carts.

    Will custom-fitted hearing aids get cheaper or more subsidized any time soon?

    Unlikely. I’ve monitored this for the past five years as an adult, anxiously waiting for prices to go down. It has not. In the meantime, the cheapest place to get a pair of them is at Costco, which employs professional audiologists. But what about alternatives? Custom-fitted devices will always be the best and most expensive.

    Ergo, chicken and egg problem. And there is now a Part Three!

  • Thoughts on Hearing Aids, Part One

    Author’s note: This post was created a fair few years ago, so some of this data is out of date, but still holds true today.

    I am starting to consider the idea of requesting donations for obtaining a hearing aid that allows me to actually communicate with a phone wirelessly, and be able to actually hear people.

    As of 2017, I am now a Cochlear Implant user, with a Nucleus 7 implant and sound processor. — Edit in 2022


    You know, most hearing aids today have a special mode that supposedly works with phones today. This is true for the most part, but in my personal experience, I’ve always found it unreliable and incredibly inconvenient, to the point where I actually take the hearing aid off to hear on the phone!

    Why? Because each time I used the hearing aid in combination with a phone with the HA in its special mode for dealing with phones, I either 1. get horrible feedback, 2. I don’t understand the person enough to make the HA even halfway useful.

    More often than not, issue 1 is what I experience. So much feedback that I often choose to take it off. Unfortunately, doing that makes it difficult to hear the person, even when maxing the audio out on the phone and damn near attempting to shove the phone straight into my ear.

    My research has narrowed down the many companies available to order hearing aids from to one company that fits the requirements that I have, which is Starkey with their 3 Series line of hearing aids. Another factor of this decision is the fact that the nearest audiology center works with Starkey.

    Edit on Friday, April 4th, 2014: I have discovered a company that sells hearing aids at a far lower cost than Starkey and other incumbent hearing aid manufacturers. Thusly I have updated this post and the numbers accordingly to account for this discovery.

    The company that cuts out the middle-man for selling hearing aids is Audicus. I have thusly chosen the appropriate hearing aid for myself, the Audicus aBlue Bluetooth Hearing Aid.

    Since I only need one hearing aid for my left ear, the base cost is $599, still a hefty amount of money for someone who lives on SSI. I chose to add the Bluetooth controller, at $299 which brings it to a grand total of $900.

    The hearing aid does not come with an ear-mold. This means I also need to spend an approximate $105 to get myself a custom-made ear-mold that fits the hearing aid at the local audiology office.

    END EDIT

    So, how much does a hearing aid cost? Anywhere from $1k to $3k. Most medical companies are required to cover $1,400, and that’s for children under 21. You’re an adult? Good luck getting a hearing aid.

    Weirdly, the only exception to this rule is California. California covers any and all adults for hearing aids. This tends to be usually the basic models, though. The problem is two-fold for me. First and foremost is that I’d need to move back to California to get that coverage. Then secondly, I’d have to wait at least a month to be covered fully under California’s medical coverage.

    Unfortunately, housing in California is not exactly cheap, so there’s problem three. And then there’s problem 4, pricing.

    But what about CareCredit? Not an option, I already tried and I was denied. So that option’s out.

    The rough figures for the hearing aid and accessories I would need? Probably $4,397. That’s assuming the provider local to my area tells me that I would need to pay that much for what I want to get. And let’s not forget taxes.

    $1,199-$2,999* with payment plans optional. CareCredit required for payment plans. This seems to be a standard range of pricing for the BTE models. $1,697 for all the accessories, which are SurfLink Media, SurfLink Mobile, SurfLink Remote.

    Actual prices for accessories:

    $399 – $499 SurfLink Media
    $799 – $899 SurfLink Mobile
    $229 – $299 SurfLink Remote

    I don’t need the Remote, really. But it’s a nice-to-have. The major accessories I would need is SurfLink Media and SurfLink Mobile, in addition to the hearing aid.

    If you’re looking for Part Two where I go deeper in detail as to why hearing aids are expensive, there you go.

  • Being Deaf, The Secret of a Hard-of-Hearing Person

    So, I’m deaf, as noted in the tag-line for my blog here.

    This post will sound very angry and bitter with regards to the way I work with people today.

    Being Deaf everyday stresses me out. It’s an unresolvable problem that will haunt me til the day I die. I feel like this constant ongoing never ending tension of potential conflict which continues to manifest day after day. All my interactions with hearing people are fraught with unease and uncertainty.

    ASL, however, on the other hand, I look forward to talking to anyone that knows the language well enough to be able to carry a conversation and therein is my hope, that I will someday be able to communicate with ease, with peace, with certainty, with a happy heart that enjoys and looks forward to interactions, instead of dreading the inevitable straining of trying to hear and listen so I don’t get into trouble.

    I’m further annoyed by the fact that I have been held accountable to all the speaking people for not hearing everything as if I were intentionally negligent. I have been punished. I was forced to wear hearing aids (not because of others wanting me to, but because of necessity and to improve the ability to understand people as they speak) and assumed to be fixed with no further attention to the matter except that I have to do all the work in two way communications.

    In my experience, everyone everywhere conspires against me to disallow me to be Deaf, intentional or not. Any accommodation is my responsibility. They expect me to listen, lean forward, strain my neck, lipread, focus, pay attention, try harder, sit up front, etc. The exception to this rule, for the most part is governmental agencies. They are required by law to provide reasonable accomodation at no cost to me.

    And it is rude to ask people to repeat themselves. They prefer I pretend to understand so they are not interrupted, yet if I fuck up on following the misunderstood, or rather improperly conveyed, instructions, I end up getting shafted. I’ve had this happen to me more than once. So I don’t enjoy the experience of interacting with hearing people. It is frustrating and I see no real way out of this.

    Yes, writing on paper, typing on a computer or phone or some other electronic devices help, but it was only within the past two to three years that I actually had technology that interacted in my medium. That is, actually having a videophone that allows me to make phone calls to governmental agencies and people that I actually want to talk to, in a language I can fluidly speak in.

    And you know what happened? I actually enjoyed interacting with the interpreters. I enjoyed talking to them, secure in the knowledge that what I am saying is being relayed exactly as I intended with near-perfect clarity.

    This is why I love self-checkouts at stores, because it doesn’t require that I interact with a cashier, because I hate having to tell people, "I’m deaf, can you please write that down?" and getting looks of irritation and anger in return. Or more often than not, simply having that person leave in disgust.

    But then, this is par for the course, and I am stuck with it. So, needs must.

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